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Through this journal I will be documenting my journey to meet the faces behind the Gaucher Initiative, a humanitarian program that provides Gaucher patients in developing countries with the enzyme replacement therapy, Cerezyme, free of charge. I have the rare opportunity to meet with patients and their families and physicians to see how the Gaucher Initiative has and continues to affect their lives.

Link to Information on Production and Supply of Cerezyme and Fabrazyme

Friday, June 19, 2009

You may have heard about Genzyme's manufacturing challenge at its Allston plant. To keep people up to date on our progress with the situation we have set up a dedicated web site with information. You can check out the web site here

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Patients in Pakistan

Wednesday, April 22, 2009

As promised, I did a video to share with you some of the patient’s stories from Pakistan. I hope you enjoy it!

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Pakistan

Tuesday, April 21, 2009

We have five patients on therapy in Pakistan. Our newest patient is a teenage girl. Her sister emailed me to let me know her sister had her first infusion a few days ago. Many people worked together to surmount importation challenges and get this girl on therapy. I’m planning a video blog later this week on Pakistan so please check back soon.

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